Impact of COVID-19 on Young Children with Autism Health

Effects of Pandemic on Adaptive Behavior in Children with Autism

Adaptive behavior refers to the skills needed for everyday functioning, including communication, socialization, and daily living skills. During the pandemic, children with autism experienced disruptions in their routines, which are often crucial for their development and well-being. According to recent research, communication scores of children with autism showed a significant decline during the pandemic, indicating a setback in this vital area of adaptive functioning (Pokoski et al., 2024). The Vineland Adaptive Behavior Scale (VABS), a standardized measure of adaptive functioning, revealed that while daily living skills and socialization improved for some children, communication abilities decreased markedly (Pokoski et al., 2024).

The decline in communication skills can be attributed to several factors. First, many children with autism missed scheduled specialty appointments, which are essential for their ongoing development and support. Those who did not receive these services reported a steeper decline in their communication skills compared to their peers who maintained access to therapy (Pokoski et al., 2024). Furthermore, the stay-at-home orders and social distancing measures limited opportunities for social interactions, which are crucial for developing and practicing communication skills.

Table 1: Changes in Vineland Adaptive Behavior Scale Scores

Relationship Between Specialty Appointments and Communication Skills

The relationship between access to specialty appointments and communication skills is critical for children with autism. A significant body of evidence suggests that regular engagement with speech and language therapists positively influences the development of communication skills (Pokoski et al., 2024). Children who missed these appointments during the pandemic exhibited a decline in their communication scores, emphasizing the need for continued access to such services, especially during emergencies when routine care is disrupted.

The use of telehealth during the pandemic provided a temporary solution for some families, allowing for continued therapy sessions remotely. However, the effectiveness of telehealth can vary based on the individual needs of the child and the adaptability of caregivers and therapists. It is essential to evaluate the efficacy of telehealth interventions compared to in-person services to understand their impact on communication skills and overall adaptive behavior in children with autism.

Behavioral and Emotional Health Outcomes During COVID-19

The pandemic has also affected the behavioral and emotional health of children with autism. Research indicates that while some aspects of adaptive behavior improved, such as daily living skills, there were notable increases in emotional and behavioral problems among children in the population control group (Pokoski et al., 2024). In contrast, children with autism reported improvements in behavioral health outcomes, suggesting that the reduction in stressors associated with structured environments like schools may have had a beneficial effect (Pokoski et al., 2024).

Table 2: Changes in Child Behavior Checklist Scores

This shift in behavioral outcomes raises questions about the resilience of children with autism and the potential long-term implications of the pandemic on their emotional health. As caregivers adapted to new routines, the emphasis on family support and engagement may have offset some negative impacts typically associated with disruptions in structured settings.

Importance of Telehealth for Children with Autism

Telehealth emerged as a vital resource during the pandemic, facilitating access to therapeutic services despite physical distancing requirements. For many families with children on the autism spectrum, telehealth provided a means to continue receiving essential support. However, the effectiveness of telehealth varies widely, and not all families were able to seamlessly transition to online services.

Telehealth offers several benefits, including convenience and reduced travel burdens, but it may not fully replicate the benefits of in-person interactions, particularly for children who require more intensive, hands-on therapy (Pokoski et al., 2024). Future considerations should focus on integrating telehealth into standard care practices while ensuring that families have the necessary resources and training to maximize its effectiveness.

Strategies to Support Autism Care During Emergencies

The COVID-19 pandemic highlighted the vulnerabilities in healthcare systems, particularly regarding the delivery of care to children with autism. Several strategies can be implemented to enhance autism care during emergencies:

1. Ensure Continuity of Care: Establish protocols to maintain access to specialty appointments, even during emergencies. Telehealth options should be expanded and optimized to meet individual needs.

2. Increase Family Support: Providing resources and training for families to support their children’s communication and behavioral needs at home is essential. This includes access to educational materials and virtual support groups.

3. Monitor Emotional and Behavioral Health: Regular assessments of emotional and behavioral health should be integrated into standard care practices to identify and address potential issues early on.

4. Collaborate with Multidisciplinary Teams: Encourage collaboration among healthcare providers, educators, and therapists to create comprehensive care plans that address the multifaceted needs of children with autism.

5. Advocate for Policy Changes: Support policies that prioritize the needs of children with autism during public health emergencies, ensuring equitable access to care and resources.

FAQ

How has the COVID-19 pandemic affected communication skills in children with autism?
Research shows that communication skills in children with autism declined during the pandemic, particularly for those who missed specialty appointments. While some areas of adaptive behavior improved, such as daily living skills, the decline in communication highlights the importance of continued access to therapy.

What role did telehealth play during the pandemic for children with autism?
Telehealth provided a critical means for families to access therapeutic services during the pandemic. While it offered convenience, the effectiveness varied, and future practices should focus on optimizing telehealth for individual needs.

What strategies can support autism care during emergencies?
Strategies include ensuring continuity of care, increasing family support, monitoring emotional and behavioral health, collaborating with multidisciplinary teams, and advocating for policy changes that prioritize the needs of children with autism.

Are there differences in behavioral health outcomes between children with autism and population control participants during the pandemic?
Yes, while children with autism showed improvements in some behavioral health outcomes, population control participants experienced an increase in behavioral and emotional problems, indicating differing impacts of the pandemic on these groups.

How can caregivers support their children with autism during times of crisis?
Caregivers can support their children by maintaining routines, engaging in meaningful activities, accessing available resources, and ensuring continued communication with healthcare providers.

References

1. Pokoski, O. M., Crain, H. M., Furnier, S. M., Gangnon, R. E., Nadler, C., Moody, E. J., Pazol, K., Stanley, M. A., & Durkin, M. S. (2024). COVID-19 Pandemic Impacts on Behavioral and Emotional Health of Young Children With Autism. Journal of the American Academy of Child & Adolescent Psychiatry, 63(2), 178-186. https://doi.org/10.1016/j.jaacop.2024.02.006

2. Kallgren, C. A., Reno, R. R., & Cialdini, R. B. (2000). A Focus Theory of Normative Conduct: When Norms Do and Do Not Affect Behavior. Personality and Social Psychology Bulletin, 26(10), 1002-1012

3. Mutz, D. C. (2015). In-Your-Face Politics: The Consequences of Uncivil Media. Princeton University Press

4. Dew, M. A., Dabbs, A. D., & Myaskovsky, L. (2015). Meta-analysis of medical regimen adherence outcomes in pediatric solid organ transplantation. Transplantation Proceedings, 47(7), 2112-2118. https://doi.org/10.1016/j.transproceed.2015.09.060

5. Cousino, M. K., Plevinsky, J., Niel, K., Rothman, E., Schnieder, L. M., & Killian, M. O. (2025). Child and adolescent heart and lung post-transplant adherence. Journal of Heart and Lung Transplantation, 44(8), 697-710. https://doi.org/10.1016/j.jhlto.2025.100293